Tuesday, September 24, 2013

Hope for the future?

A new project launched yesterday that could bring some important research to the UK. You can read about it in this article in the Huffington Post by Laura Collins and on Charlotte Bevan's blog
The research is described here and can be summarised thus: 
"NGI represents a global effort to detect genetic variation that contributes to this potentially life-threatening illness. The goal of the research study is to transform our knowledge about the causes of eating disorders to work toward greater understanding and ultimately a cure."
For someone who has been living AN since 1989, the idea that there may "ultimately [be] a cure" is so overwhelming that I want to do all I can to help with the project. I've long wanted to donate my blood to add to the database but currently I can't, because I live in the UK. If Charlotte's Helix can source the funding to get the project over here, those of us who fear that it might be too late for us might at least be able to see hope for other girls, boys, women, men, daughters, mothers, sisters, brothers. And it will be a lasting legacy for the advocacy work that Charlotte Bevan has done so brilliantly since her own family experienced the devastation of AN first hand.

To donate, there is a Virgin Money site that accepts donations via PayPal, cards, etc.

Please do what you can to help. Do what you can to help maintain hope in an illness that works hard to drain it from us.

1 comment:

Anonymous said...

Thank you dear friend. Looking forward to your blood - does that sound weird?